Table 1 Elements of informed consent

data subject

A person over 18 years

Person under 18 years

legal representative

collective

Person under government custody

Person who self-identify as ethic minority

Person with difficulties processing information

Consent to

Goals

To advance science

To do research in any area

Improving health systems

For research, public benefit

For profit-driven research

Action

Donate my health data

Donate social context data

Donate tissue and extracted data from my tissue

Donate complementary data on this and future clinical research

Donate complementary data to this and future qualitative research

Donate all my data for secondary research use

Benefits

For research, public benefit

To receive tailored advice

To improve care for me

To do disease research on the illnesses, I live with.

To improve care for others

To do research outside of health

For self-profit

Timeframes

Indefinitely

As long as I am alive

Until my next visit to a health setting

Until I revoke

As long as legislation does not change

for 5 years

Today

Risk

Low

Medium

Hight

Jurisdictions

Any jurisdiction

Supra national political organisation

Country of legal residence

Country of citizenship

Territories with the same or more protections

Jurisdiction with the same legislation within this country

This county

Agents

Health actors under Official collective authorities

under Official collective authorities

Private Education institutions

Any Official collective authorities

Private companies

Commons

Everybody